COVID-19 information for adults with 22q
Disclaimer: The following information pages are provided for educational purposes only. They are not intended to be taken as medical advice. If you have questions or concerns, please discuss them with your doctor or healthcare provider.
On this page
- How to avoid catching COVID-19
- What to do if you may have been exposed to the coronavirus
- Who should be tested
- Reliable resources for information on COVID-19 (including tip sheets)
- What to do for appointments at our Clinic
- Support and financial assistance
- Things you can do at home
COVID-19 is a respiratory disease caused by a new coronavirus called SARS-CoV-2.
Definition of "Symptomatic" for COVID-19
- fever - temperature of 37.8°C (100.04°F) or greater
- any new/worsening:
- shortness of breath
- sore throat
- runny nose or sneezing (see note below)
- nasal congestion (see note below)
- hoarse voice
- difficulty swallowing
- new smell or taste disorder(s)
- abdominal pain
- clinical or radiological evidence of pneumonia
Note: In patients presenting with ONLY runny nose/sneezing or congestion, consideration should be given to other underlying reasons for these symptoms such as seasonal allergies and post-nasal drip
Atypical Symptoms/Signs of COVID-19
Atypical presentations of COVID-19 should be considered, particularly in children, older persons, and people living with a developmental disability.
- Unexplained fatigue/malaise
- Delirium (acutely altered mental status and inattention)
- Unexplained or increased number of falls
- Acute functional decline
- Exacerbation of chronic conditions
- Unexplained tachycardia (very fast heart beats), including age specific tachycardia for children
- Decrease in blood pressure
- Unexplained hypoxia (low oxygen level), even if mild i.e. O2 saturation <90%
- Lethargy, difficulty feeding in infants (if no other diagnosis)
How to avoid COVID-19
Although this disease has been spreading quickly around the world, there are a few things you can do to avoid catching it.
- Stay at home as much as possible
- Avoid being very near another person
- "Social distance" means keeping about 6 feet apart (2 metres, or 3 big steps)
- Wash your hands with soap and water properly and frequently
- If soap and water are not available, use an alcohol-based hand sanitizer. Rub the sanitizer all over your hands and let your hands dry in the air.
- Wear masks as an added layer of protection
- Avoid touching your eyes, nose, and mouth with your hands
- Sneeze or cough into your sleeve or a tissue and wash your clothes often
- Disinfect spaces regularly,especially phones, door handles, etc.
- If you have returned from anywhere outside Canada, including the United States, you must self-isolate (i.e. stay at home and avoid close contact with others, including those in their home) for a total of 14 days.
- Tip Sheets from our Clinic and the International 22q Foundation
- CBC article: Masks: Everything you need to know but might be too afraid to ask
- CNN article: Dear Grandma, read this before you visit the little ones
- The tips from this article are also applicable for visits that involve our patients and people with chronic health conditions
- Video: Why does staying at home help?
- Video: How viruses attack the body and how it fights back
- Nutrition and advice on buying/storing food items from the Dietitians of Canada
- Please scroll down on the website
Who should be tested for COVID-19?
Reliable resources for information on COVID-19
COVID-19 Information for individuals with 22q
- From our Clinic
- International 22q Foundation - COVID-19 Resources
COVID-19 Information for individuals with immunodeficienciesThe Immune Deficiency Foundation generated a series of COVID-19 Videos.
- To find out how individuals with immunodeficiencies have been doing when they contract COVID-19, please see the April 10 video (7 min 55 sec) and the May 8 video (9 min 11 sec)
|Date of video||Topics|
|March 3, 2020||COVID-19 updatePreventing infectionLogistical plansWhat to do if you get sick|
|March 10, 2020||Update and nomenclatureTestingLife long immunityRisks to patients with immunodeficienciesAre immunoglobulins protectiveHow not to touch your face|
|March 18, 2020||Updates on treatmentHow does the immune system respond to a virus?Specific concerns for different immunodeficienciesVaccine developmentLinks|
|April 10, 2020||Course of typical infectionTherapiesHow well people with immunodeficiencies do when they have COVID-19|
|May 8, 2020||TreatmentStatisticsImmune modulatorsHow well people with immunodeficiencies do when they have COVID-19Vaccine developmentAre immunoglobulins protective?|
|May 29, 2020||PCR vs. Antibody testingImmunoglobulin replacementGoing back to school or workMultisystem inflammatory syndrome in children|
COVID-19 Information for everyone
There are a lot of information on the Internet about the current pandemic, but not everything is accurate.
Please visit the following websites for the most up-to-date and reliable information:
- University Health Network (UHN) - COVID-19 Info/Policies – UHN is the organization that runs the Toronto General Hospital.
- UHN's COVID-19 Resources
- This site offers pamphlets in other languages
- COVID-19 - What you need to know from the Ontario Medical Association
- City of Toronto
- Public Health Ontario
- Government of Canada - includes outbreak updates, symptoms, prevention, travel, preparation
- A COVID-19 Glossary from the CBC
What to do for appointments at our Clinic
Please do not come to the Clinic if you have any of the symptoms listed above.
Please see our section on Clinic operations and hospital restrictions during COVID-19.
Please note that Toronto General Hospital has a Universal Masking Policy.
Support and financial assistance
While there are support services and financial assistance available, we urge you to be very careful about possible scams. Please visit the Government of Canada's Slam the scam website to learn how to protect yourself.
The Center for Disease Control's page on Stress and Coping
- Get help with your finances: filing taxes, finding and getting emergency benefits, and help with budgeting.
- Supports for People with Disabilities and Their families
- Note: This article is also suitable for workers who are providing essential services during the COVID-19 pandemic.
Possible additional funding for Ontario Works (OW) and Ontario Disability Support Program (ODSP) recipients
- Please contact your caseworkers to apply.
- Financial support to parents to assist with the costs of educational resources
Things you can do at home
Watch videos on handling COVID-19 and self-isolation
- Broadcast from Queen Elizabeth II
- Advice from former astronaut Chris Hadfield on coping with self isolation
- Message from the 22q11.2 Society
- Some of us are in this video!
Be a tourist in your own home
Visit zoos and aquariums virtually
- You can take part in the International 22q Foundation's 10th annual 22q at the Zoo Virtual Worldwide Awareness Day on May 17th, 2020.
Tour famous landmarks around the world using Google Streetview