Raising Awareness about 22q in UHN
22q is not a well-known condition, even among medical professionals. In order to raise awareness, we displayed our infographic about 22q on the computers of the University Health Network from November 20th to 27th, 2021, and we will be doing it again from November 19th to 26th, 2022. The healthcare professionals we aim to reach are those who work at the Toronto General Hospital, Toronto Western Hospital, Princess Margaret Hospital, and Toronto Rehab – University Centre.
Lighting the CN Tower in Red!
The CN Tower was lit up in red to raise awareness for 22q on November 22nd, 2021 and will light up in red again on November 22nd, 2022! To see photos of the CN Tower in red from 2021, please open this Google Photo folder.
We chose November 22nd (“22/11”) as a play on the name of the condition, 22q11.2 deletion syndrome (“22q”). The lighting of the CN Tower was part of the “Luces por el 22q/Lighting the 22q” international awareness movement that began in Spain in 2018. Buildings in Spain, Germany, Belgium, Finland and the city of Philadelphia, United States, were lit up as part of the movement on the 22nd of November in previous years. In 2021, Toronto joined this international awareness movement. We continue to be a national leader in providing care for families through clinics at the Toronto General Hospital and at SickKids Hospital, and in internationally renowned research into adult outcomes and genetics.
If you wish to photograph or gather to watch the lighting, please note that the Tower will be lit at sunset (about 4:46 PM on Tuesday evening, November 22, 2022). However, the red light will only become visible as the sky darkens, which occurs approximately 30 minutes after sunset, so by about 5:16 PM. In addition, the CN Tower presents a standard light show for 8 minutes at the top of every hour, so, at 5 PM, 6 PM, 7 PM, etc.
If you post your photos on social media, please use the hashtag #Light_the_night_for_22q.
If you would like to request other buildings to be lit up in red on November 22nd, 2022, please see our post for more information.