The Dalglish Family 22q Clinic

The 12^th Biennial International 22q11.2 Conference - Family Meeting

Split, Croatia
July 26^th to 28^th, 2022
Program

Anne Bassett

• Optimizing Outcomes for Adults
• Pediatric and Adult Healthcare Recommendations
• Newborn Screening
• Report from the International 22q11.2 Brain and Behaviour Consortium
• The Importance of Having a Medical Manager

Lisa Palmer

• Keeping Safe as an Emerging Adult - Internet Safety, Medical Power of Attorney, Sexuality…

Ania Fiksinski

• Understanding IQ Scores

22q11.2 Family Conference Web Series

Because of the COVID-19 pandemic, the annual 22q11.2 Family Conference adopted the format of monthly online webinars. The theme of the 2020-2021 web series was Mental Health Matters. Our Clinic Director, Dr. Anne Bassett, spoke about Mental Health and 22q Research on March 4^th, 2021. Our Social Worker, Lisa Palmer, talked about the Benefits of Peer and Other Supports on May 16^th, 2021.

The 3^rd Scientific 22q11 Seminar for Families and Professionals

Center of Genetics and Genomics, Faculty of Medicine, Universidad del Desarrollo, Chile
November 17^th, 2018
News article (Spanish)

Dr. Erik Boot, our former Dalglish fellow who is specialized in intellectual disabilities, presented “Health care management of adults with a 22q11.2 deletion” to family members.

5^th Annual 22q11.2 SickKids Family Conference

Toronto, ON, Canada
November 3^rd, 2018
Program

At this conference geared towards young patients and their families at SickKids Hospital, Clinic social worker Lisa Palmer facilitated workshops about advocacy and disclosing a diagnosis of 22q.

The 11^th Biennial International 22q11.2 Conference - Family Meeting

Whistler, BC, Canada
July 14^th to 15^th, 2018
Family Meeting Program

Anne Bassett

• Optimizing Outcomes for Adults
• Report from the International 22q11.2 Brain and Behaviour Consortium
• The Importance of Having a Medical Manager

Ania Fiksinski

• Understanding IQ Scores

Phoenix Children’s Hospital 4^th Annual 22q Family Symposium

Phoenix, Arizona
May 19^th, 2018

Dr. Anne Bassett was the keynote speaker at this family event, where the theme was “Transition to Success”. She spoke about health issues associated with 22q over the lifetime, especially in teenagers and adults.

Ontario Police Presentation

Richmond Hill, Ontario April 7^th, 2017

Clinic social worker Lisa Palmer and dietitian Samantha D’Arcy presented at the York Region Police headquarters to a group of police officers across Ontario who work in schools to educate about safety issues. They presented information about 22q and gave tips on how to communicate with people with 22q in the context of law enforcement and safety issues.

3rd Annual 22q Family Conference

Toronto, Ontario, Canada
November 12^th, 2016

At this conference geared towards patients and their families, Clinic social worker Lisa Palmer presented about personal advocacy, consent and respect. Clinic dietitian Megan Morrison presented about nutrition and exercise.

Grey Bruce Health System Grand Rounds

Owen Sound, Ontario, Canada
April 14^th to 15^th, 2016

At two presentation in Owen Sound and nearby Walkerton, Ontario, Dr. Bassett and Dr. Boot presented about 22q, its prevalence, features and new advances in research to clinicians, community workers and educators, and the general public.

2nd Annual 22q Family Conference

Toronto, Ontario, Canada
November 7^th, 2015

Dr. Erik Boot and our Clinic social worker, Lisa Palmer, presented two talks about transitioning to adult care for individuals with 22q and their families, as well as developing advocacy skills.

22q University Online Webinar

February 2^nd, 2015

Our registered dietitian, Megan Morrison, presented a webinar called “Nutritional Health and its impact on Adults with 22q Deletion Syndrome” via 22q University. A video recording of this webinar can be viewed on the website of the 22q Family Foundation (formerly known as the Dempster Family Foundation).

22q Workshop for York Support Services Network

Aurora, Ontario, Canada
November 2014

Our Clinic social worker, Pam MacFarlane, presented a workshop to members of the York Support Services Network about 22q, its features and how to best support individuals living with this condition.

The 9^th Biennial International 22q11.2 Conference - Family Meeting

Mallorca, Spain
June 21^st, 2014

Dr. Anne Bassett presented “Long-term psychiatric management and anticipatory care - Adult management guidelines” [Video]

TEDMED Day 2013

Dr. Bassett’s gave a presentation on TEDMED DAY 2013, which was hosted by the Institute of Medical Sciences at the University of Toronto. The video is available on YouTube.