2012 to 2015
The Dalglish Family Chair in 22q11.2 Deletion Syndrome was set up to support Dr. Anne Bassett for patient care, research and education related to establishing the world’s first clinic devoted to adults with 22q11.2 deletion syndrome (22q11.2DS) and their families. This Clinic was started at the Toronto General Hospital through a private donation by the W. Garfield Weston Foundation and the Dalglish Family Foundation. Since 2013, the Chair funds have supported Dr. Bassett and two other physicians, Dr. Alan Fung (2013-15) and Dr. Maria Corral (2016-present), in this work.
On December 11th, 2012, His Excellency the Right Honourable David Johnston, Governor General of Canada, along with the Honourable Deborah Matthews, Minister of Health and Long-Term Care, officially opened The Dalglish Family Hearts and Minds Clinic at University Health Network’s Toronto General Hospital. We began to receive patients in January 2013.
Here are the news articles about the establishment of the Clinic:
- W. Garfield Weston Foundation grants $4 million to University Health Network to establish world-first “Hearts and Minds” clinic
- Newswire.ca, July 19th, 2012
- World’s first “Hearts and Minds” clinic for adults with genetic syndrome
- UHN Newsroom, December 11th, 2012
- How a new clinic offers a better approach to chronic care
- The Globe and Mail, December 11th, 2012
- The holistic approach to 22q
- The Globe and Mail, November 4th, 2015
Here are our first two Clinic magnets:
2015 to 2017
We continued to hold transition clinics together with the Hospital for Sick Children. This full day program gives teens with 22q and their caregivers information about adult care and enables a smooth transition from the 22q Clinic at SickKids to our Clinic.
We pioneered remote patient care in collaboration with the Ontario Telemedicine Network. We also held travel clinics in Owen Sound (2015) and Ottawa (2017), with over 50 patients and family members seen.
Our Clinic model was introduced to Hong Kong, Phoenix, Bonn, Dublin, and centres across Canada.
In January 2016, our Clinic’s name was officially changed to The Dalglish Family 22q Clinic.
Here is our magnet after the name change:
2018 to present
In 2018, our financial structure changed, and we were no longer a privately-funded clinic. The Ontario Ministry of Health & Long Term Care (MOHLTC) supports the basic operations of our Clinic so that we can care for our patients’ health needs. However, we receive no financial support for the education, outreach, and many other things we do for patients with 22q and their families.