Special Programs and Events
In addition to medical and counselling appointments, our Clinic offers the following programs for our patients.
Peer Support Groups
The Dalglish Family 22q Clinic holds peer support groups occasionally for individuals with 22q and their parents or caregivers. We facilitate two groups, which each run for about 90 minutes:
A group for parents or caregivers – an opportunity to talk to other parents about concerns, challenges, and successes.
A group for our adult patients – a chance for our patients to meet each other, participate in some fun exercises and to discuss topical subjects with staff facilitation.
For those parents and caregivers unable to attend in person, an on-line weblink is offered to give access to the group meeting from home.
Please contact our Clinic at (416) 340-5145 for more information.
Becoming an adult is a process that sparks change in everyone’s lives, including individuals with 22q11.2 deletion syndrome (22q). “How will 22q symptoms affect my life as I become an adult?” This is a common question for many of our patients and their families.
The Dalglish Family 22q Clinic, in collaboration with The SickKids Good 2 Go Transition Program and The SickKids 22q Deletion Syndrome Clinic, offers the 22q Transition Clinic twice a year. This full day program gives individuals with 22q information about adult care and shows them how to make a smooth transition from the Clinic at SickKids to ours at the Toronto General Hospital.
Our fourth 22q Transition Day was held on Tuesday, May 10th, 2016. We look forward to holding our next 22q Transition Clinic. Please stay tuned for more information.
Medical Information Cards
Many adults with 22q11.2DS have multiple health concerns and long lists of medications. Some of them also have intellectual disabilities and are therefore unable to adequately explain their health conditions. If these patients need medical help urgently, or if they encounter medical professionals who are not familiar with 22q11.2DS, they (or their family members) have a hard time providing crucial information to those who try to help.
To solve this problem, our Clinic has been offering personalized medical information cards to our patients. These are wallet-sized, laminated paper cards that show emergency contact information on one side and personal medical information on the other. We began this quality improvement project in late-2014, and have issued medical information cards to over 47 patients as of January, 2017.
If you are a patient at the Dalglish Clinic and would like to receive a card, please contact our clinic at (416) 340-5145.
22q at the Zoo
22q at the Toronto Zoo Day is an international initiative to raise awareness about 22q11.2 deletion syndrome. The Toronto event is co-hosted by both the SickKids 22q Clinic and the Dalglish Family 22q Clinic. This enjoyable day gives families, friends, and professionals a chance to socialize, network and raise public awareness of 22q11.2 deletion syndrome.
The 2017 event will take place on Sunday, June 11th, 2017. Please note that the Toronto event is not taking place on the same day as the worldwide event.
A group of parents of children with 22q has been organizing a Family Conference annually in partnership with the Sickkids 22q Deletion Syndrome Clinic. Although the Dalglish Clinic is not one of the organizers, our Clinic staff often give multiple presentations at this event.
The 2017 event will take place on November 11th and 12th.