Additional Resources for 22q11.2DS

The Dalglish Family 22q Clinic and the UHN are not responsible for the content of external internet sites.

In addition to the resources provided in this section, please also see:

22q11.2DS information provided by hospitals and academic institutions

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Books and educational seminars on 22q11.2DS

Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome) by Raymond Tanner.
This book is a compilation of stories from families from Australia, Israel, France, New Zealand, South Africa, United Kingdom and the USA who tell about their trials and tribulations in bringing up a child with VCFS. It also describes Raymond’s life story (aged 54—diagnosed at 43) and his two sons—James, deceased aged 9 days old, died 18 years ago; Andrew, aged 16. Proceeds from the book will go to the VCFS Educational Foundation and to the VCFS Foundation Queensland Inc. new VCFS Clinic project.

Educating Children With Velo-cardio-facial Syndrome (Also Known As 22q11.2 Deletion Syndrome and DiGeorge Syndrome) by Donna Cutler-Landsman.
The author also hosts seminars and webinars on the topic. Please visit for further information.

A Different Life: Growing Up Learning Disabled and Other Adventures by Quinn Bradlee.
Bradlee is the son of long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. He was diagnosed with velo-cardio-facial syndrome at age 14. In this funny and fast-moving book, he talks about his "different life" of dealing with learning difficulties and social challenges.

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22q11.2DS foundations

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Support Groups

  • Chromosome 22 Central

    Chromosome 22 Central
    c/o Murney Rinholm
    7108 Partinwood Drive,
    Fuquay-Varina, North Carolina, 27526 USA
    Tel (919) 567-8167
    EMAIL: usinfo @ (remove spaces)

    Contact Murney if you have questions about donations or C22C operations.

    Stephanie St-Pierre
    338 Spruce Street North,
    Timmins, Ontario, Canada P4N 6N5
    EMAIL: info @ (remove spaces)

    Contact Stephanie if you want to submit info for our newsletter, advertise an event or research on our website, join our group or connect with families in our database, or have questions about any of the C22 conditions or our group in general.

  • Canadian Congenital Heart Alliance (CCHA)

    C4-233 Cross Avenue, P.O. Box 233
    Oakville, ON L6J 2W9

    Email: info @ (remove spaces)

    90-95% of children with heart defects will live to adulthood and well beyond. CCHA is the only non-profit organization in Canada that supports all Canadians with congenital heart defects.

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History of 22q11.2DS

The History of the Chromosome 22q11.2 Deletion from the website of The Children’s Hospital of Philadelphia, PA, USA

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Other 22q11.2DS Clinics

Here is a map that shows the locations of all the 22q11.2DS clinics in North America.

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22q11.2DS information in other languages

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