Additional Resources for 22q11.2DS
The Dalglish Family 22q Clinic and the UHN are not responsible for the content of external internet sites.
In addition to the resources provided in this section, please also see:
22q11.2DS information provided by other hospitals and academic institutions
Books and educational seminars on 22q11.2DS
22q Through My Eyes by Jordan Nanos
The target audience of 22q Through My Eyes are teenagers and young adults with 22q11.2DS. You can purchase it for $20 directly from the Genetic Counsellors of Ontario, which is the publisher of the book. All proceeds from sales of this book will be donated to the SickKids Foundation 22q Family Fund. Thank you for your support!
Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome) by Raymond Tanner.
Educating Children With Velo-cardio-facial Syndrome (Also Known As 22q11.2 Deletion Syndrome and DiGeorge Syndrome) by Donna Cutler-Landsman.
A Different Life: Growing Up Learning Disabled and Other Adventures by Quinn Bradlee.
- The International 22q11.2 Foundation, Inc.
- Max Appeal!, UK
- 22q11 Charity Ireland
- 22q Foundation Australia and New Zealand
- 22q Family Foundation (formerly the Dempster Family Foundation), Aptos, CA, USA
Chromosome 22 Central
c/o Murney Rinholm
7108 Partinwood Drive,
Fuquay-Varina, North Carolina, 27526 USA
Tel (919) 567-8167
EMAIL: usinfo @ c22c.org (remove spaces)
Contact Murney if you have questions about donations or C22C operations.
338 Spruce Street North,
Timmins, Ontario, Canada P4N 6N5
EMAIL: info @ c22c.org (remove spaces)
Contact Stephanie if you want to submit info for our newsletter, advertise an event or research on our website, join our group or connect with families in our database, or have questions about any of the C22 conditions or our group in general.
Canadian Congenital Heart Alliance (CCHA) 90-95% of children with heart defects will live to adulthood and well beyond. CCHA is the only non-profit organization in Canada that supports all Canadians with congenital heart defects.
CCHA C4-233 Cross Avenue, P.O. Box 233 Oakville, ON L6J 2W9
Email: info @ cchaforlife.org (remove spaces)
Canadian Congenital Heart Network The learning centre contains information and resources for adults who were born with a heart defect.
Schizophrenia Society of Canada Information for patients and families affected by schizophrenia, including treatment, daily living and advocacy.
History of 22q11.2DS
The History of the Chromosome 22q11.2 Deletion from the Clinical Genetics Center - The Children's Hospital of Philadelphia, PA, USA
Other 22q11.2DS Clinics
Here is a map that shows the locations of all the 22q11.2DS clinics in North America.
22q11.2DS information in additional languages
Note: The 2015 Guidelines are for managing adult patients. The 2011 Guidelines are for patients from infants to adults.
|Organizations||Practical Guidelines, Consensus Document, and Pamphlets|
|International 22q11.2 Foundation (for families)|
22q11.2 Society (for researchers and medical professionals)
|Italian||Associazione Italiana Delezione Cromosoma 22 ONLUS|