About the clinic

Our clinic was formerly known as "The Dalglish Family Hearts and Minds Clinic". It is the first of its kind in the world, specializing in adults with 22q11.2 Deletion Syndrome ("22q11.2DS" or simply "22q").

The clinic provides individuals with 22q with care from healthcare experts from many specialties. It is devoted to helping adults with 22q and their families.

Vision

We aim to be a world leader in 22q, providing:

  • Specialized, individual-centred care to adults with 22q and their families
  • Excellence in education for patients, families, as well as trainees and health care providers
  • World-class research to advance our understanding of all aspects of 22q and improve care and outcomes.

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At the clinic we provide

Clinic waiting area

  1. Excellent care
    The knowledge from many health professions provides the best possible care. We make our decisions based on the best and most up-to-date research available. Our patients receive seamless and coordinated care in one Clinic.

  2. Education
    We will teach healthcare providers, students at all levels, the public, patients, and their loved ones about 22q and how to provide or obtain the best care possible.

  3. New treatments
    We will bring the best treatments and most up-to-date research findings to our patients and their families.

  4. New research
    We do cutting-edge research about 22q in our clinic and through related programs.

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Services

Our aim is to make appointments as convenient as possible for individuals with 22q, their families and caregivers by coordinating care with various specialities in one visit. The specialists include, but are not limited to:

  • Genetics expert in 22q
  • Psychiatrist
  • Endocrinologist
  • Neurologist
  • Social Worker
  • Registered Dietitian

Cardiologists from the Toronto Congenital Cardiac Centre for Adults (TCCCA) are an important part of the Dalglish Clinic team.

TCCCA logo

The health care providers involved in the individuals' care will:

  • Provide timely and effective care for 22q
  • Provide regular and careful monitoring of their specific health conditions
  • Give individuals who have 22q and their caregivers information and specialized support
  • Connect them with local resources and peer support as needed
  • Coordinate care and help with advocating

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Appointments/referrals

We take referrals from healthcare professionals from Ontario and elsewhere in Canada.

If you live outside of Canada, we recommend that you check the list of 22q clinics on the website of the International 22q11.2 Foundation.

Note: Unfortunately, we are unable to accept patients from the USA. If your patient lives in the States and is searching for 22q medical specialists, please check with the hospitals in your area. A 22q clinic (even if it is in a pediatric hospital) can provide you with information regarding specialists for adults.

If you would like to refer an international patient (but not from USA) to our clinic, please check the website of the International Patient Program at the UHN regarding eligibility.

First visit:

Please bring:

  • Your Ontario Health Card (OHIP Card)
  • All medications you are currently taking, including herbal and over-the-counter remedies, puffers, lotions
  • List of doctors, hospitals, and past records
  • Record of any changes to your condition
  • Trusted friend or family member
  • Any forms/documents you need reviewed

As of November 28th, 2016, hospital cards are no longer required.

Your first appointment will take about 4 to 6 hours. You will have the chance to meet with our social worker, dietitian and doctor, who all specialize in 22q. Our Patient Flor Coordinator will call you ahead of time to explain this process. We try to make the visit as simple and convenient for you and your family as possible.

Follow-up visits:

Please bring your Ontario Health Card (OHIP Card).

Your follow-up visit will be shorter than your first visit, but this will depend on the type of appointment you have and which specialist(s) you are seeing. Plan for this visit to take about 1 to 2 hours.

Our team is dedicated to providing the most comprehensive and seamless care to patients, families and caregivers. We will do our best to plan your care with different specialties all in one visit (for example: psychiatry, cardiology, and endocrinology).

The initial appointment must take place within the Dalglish Clinic. For individuals who find it very difficult to travel to the clinic due to distance or mobility issues: the Director of the clinic may offers to see the individual via Telehealth's teleconferencing service for the second or subsequent appointments. Individuals can inquire about the possibility of receiving this service at their first appointment at the Dalglish Clinic.

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