CN Tower lights up in red for 22q

Tuesday, 22nd November 2022 5:30 pm

We are delighted to let you know that the CN Tower will be lit up in red again to raise awareness for 22q on November 22nd, 2022! To see photos of the CN Tower in red from 2021, please open this Google Photo folder.

CN Tower in Red

We chose November 22nd (“22/11”) as a play on the name of the condition, 22q11.2 deletion syndrome (“22q”). The lighting of the CN Tower was part of the “Luces por el 22q/Lighting the 22q” international awareness movement that began in Spain in 2018. Buildings in Spain, Germany, Belgium, Finland and the city of Philadelphia, United States, were lit up as part of the movement on the 22nd of November in previous years. In 2021, Toronto joined this international awareness movement. We continue to be a national leader in providing care for families through clinics at the Toronto General Hospital and at SickKids Hospital, and in internationally renowned research into adult outcomes and genetics.

If you wish to photograph or gather to watch the lighting, please note that the Tower will be lit at sunset (about 4:46 PM on Tuesday evening, November 22, 2022). However, the red light will only become visible as the sky darkens, which occurs approximately 30 minutes after sunset, so by about 5:16 PM. In addition, the CN Tower presents a standard light show for 8 minutes at the top of every hour, so, at 5 PM, 6 PM, 7 PM, etc.

If you post your photos on social media, please use the hashtag #Light_the_night_for_22q.

If you would like to request other buildings to be lit up in red on November 22nd, 2022, please see our post for more information.

22q at the Zoo - Toronto Event

Sunday, 17th July 2022 10:00 am

Zoo day 2022 poster

The International 22q11.2 Foundations’ Annual 22q at the Zoo – Worldwide Awareness Day (22q at the Zoo) is an international initiative to raise awareness about 22q11.2 deletion syndrome.

The Toronto event is co-hosted by the 22q Deletion Syndrome Clinic at SickKids Hospital and the Dalglish Family 22q Clinic. The focus of the day is for individuals with 22q, their families and Clinic staff to socialize, network and raise awareness of 22q in the community. Participants also have the chance to join in fun activities with their friends and families and enjoy a day at the Toronto Zoo.

Toronto’s 2022 event is scheduled to take place on Sunday July 17th, 2022.
Register now for 22q at the Zoo - Toronto.

The most recent in person 22q at the Zoo - Toronto event took place on May 26th, 2019 (Sunday). Please enjoy these photos from the Toronto Zoo.

Zoo Day 2019

Zoo Animals

22q at the Zoom 2021

Sunday, 16th May 2021 11:00 am

The 11th Annual 22q at the Zoo – Worldwide Awareness Day will take place as a virtual event entitled: 22q at the ZooM. Please see below for the agenda (also available as a pdf). For more information, please visit the event website.

22q at the Zoom 2021

Let’s Talk About the COVID-19 Vaccine

Thursday, 25th March 2021 1:00 pm

UHN’s Dr. Abdu Sharkawy, Dr. Lisa Richardson, and a Patient Partner will share their expertise and experiences at this virtual event on Thursday March 25th, 2021 at 1 pm. The free session is open to everyone.

Event flyer


  • How the vaccine can help prevent the spread of COVID-19
  • Answers to common questions and concerns about the vaccine
  • Resources at UHN and in the community that can help you learn more about the vaccine

22q11.2 Parent Series - Mental Health

Thursday, 4th March 2021 7:00 pm

The 22q11.2 Family / Parent Conference is an annual family-organized event. This conference gives individuals with 22q and their families the chance to learn more about 22q and to meet other families sharing the same experiences. The Parent Conference organizers are hosting monthly, virtual events from November 2020 to May 2021.

The next event takes place on Thursday March 4th, 2021 from 7 pm to 9 pm. Dr. Anne Bassett, our Clinic Director, will be giving a talk on Mental Health.

Cost: $15

For details and registration, please visit the event website.