CN Tower lights up in red for 22q
The CN Tower will light up in red again to raise awareness for 22q on Wednesday, November 22nd, 2023!
We chose November 22nd (“22/11”) as a play on the name of the condition, 22q11.2 deletion syndrome (“22q”). The lighting of the CN Tower was part of the “Luces por el 22q/Lighting the 22q” international awareness movement that began in Spain in 2018. Buildings in Spain, Germany, Belgium, Finland and the city of Philadelphia, United States, were lit up as part of the movement on the 22nd of November in previous years. In 2021, Toronto joined this international awareness movement. We continue to be a national leader in providing care for families through clinics at the Toronto General Hospital and at SickKids Hospital, and in internationally renowned research into adult outcomes and genetics.
Please click the Google Photo links below to see photos from previous years:
Raising Awareness about 22q in UHN
22q is not well-known, even among medical professionals. In order to raise awareness, we display our infographic about 22q on the computers of the University Health Network (UHN) in November every year. In 2023, this event will take place from November 11th to 18th. The healthcare professionals we aimed to reach are those who work at the Toronto General Hospital, Toronto Western Hospital, Princess Margaret Hospital, and Toronto Rehab – University Centre.
Please feel free click to download the following infographic in jpg or pdf format. Together, let’s raise awareness for 22q!
22q at the Zoo (Toronto Event)
The International 22q11.2 Foundations’ Annual 22q at the Zoo – Worldwide Awareness Day (22q at the Zoo) is an international initiative to raise awareness about 22q11.2 deletion syndrome. The Toronto event is co-hosted by the 22q Deletion Syndrome Clinic at SickKids Hospital and the Dalglish Family 22q Clinic. The focus of the day is for individuals with 22q, their families and Clinic staff to socialize, network and raise awareness of 22q in the community. Participants also have the chance to join in fun activities with their friends and families and enjoy a day at the Toronto Zoo.
Our next event will take place at the Toronto Zoo on Sunday, June 4th, 2023. Please note that Toronto’s event date is different from that of the International 22q11.2 Foundation. More information will be available shortly.
Please enjoy our photo collection from last year’s event.
Transition Clinic
“How will 22q symptoms affect my life as I become an adult?” is a common question for many of our patients and their families.
The Dalglish Family 22q Clinic, in collaboration with the the SickKids Hospital 22q11 Deletion Syndrome Clinic, offers a 22q Transition Clinic several times per year. This program is one of the first in the world to focus on transition to adult care for patients with 22q. It gives teens with 22q and their caregivers information about adult care and enables a smooth transition from the 22q Clinic at SickKids to our Clinic at the Toronto General Hospital.
For more information, please email us at 22q@uhn.ca.
Peer and Caregiver Support Group
We invite you to join us for our upcoming Peer and Caregiver Support Groups! These groups are a chance for patients and caregivers alike to get together to meet, discuss questions, successes and challenges.
When: Wednesday March 15th, 2023 from 2:00 pm – 3:00 pm
Where: Online. This is a virtual support group. The link will be sent out closer to the date.
We facilitate two simultaneous groups:
- A group for parents or caregivers - an opportunity to talk to other parents and caregivers about concerns, challenges, and successes.
- A group for our adult patients - a chance to meet each other, participate in some fun exercises and to discuss topical subjects supported by our staff.
All patients and caregivers must be registered with our Clinic to join in the group. At this time, only residents of Ontario may participate in these groups, due to unfortunate limitations on allied health professions.
Please RSVP by March 8th, 2023 by calling 416-340-3729 or emailing 22q@uhn.ca.
Look forward to seeing you on the screen!!