22q11.2 Parent Conference

Saturday, 7th November 2020 10:00 am

The 22q11.2 Parent Conference is an annual family-organized event held at SickKids in Toronto. This conference gives families affected by 22q a chance to learn more about syndrome and to meet others sharing the same experiences.

The 2020 Parent Conference will be held on November 7th (Saturday) and 8th (Sunday) with the theme Mental Health Matters. The event is designed for parents, and there will be a stream for parents of teens and young adults. More information will be posted on www.22qfamilies.org.

save the date 2020

Transition Day

Tuesday, 28th July 2020 10:00 am

Due to the COVID-19 situation, the 22q11 Clinic at the Hospital for Sick Children will not be holding in-person transition clinics. Patients originally scheduled for the transition clinic day in April will be rescheduled for individual virtual sessions Tuesday July 28th. Patients will receive additional information about this day.

Thank you.

22q and ZooM!

Sunday, 17th May 2020 12:00 pm

What an AMAZING Day at the ZooM for 22q! Thank You for Joining Us and Raising Awareness!

The International 22q11.2 Foundation would like to thank all the event coordinators, co-hosts, foundations, 22q clinics and families around the world that continue to collaborate and work tirelessly to bring 22q to the forefront every day! The celebration happened because of YOU! Here are some photos. More to come, so please stay tuned. Thank you!

The 10th Anniversary of 22q at the Zoo – Worldwide Awareness Day is transformed into 22q and ZooM due to the COVID-19 pandemic. We will have a live virtual feed that goes around the world for 24 hours!

Start time:
7:00 PM on Saturday May 16th Toronto time
which corresponds to 11 am in New Zealand on Sunday May 17th

End time:
7:00 PM on Sunday May 17th Toronto Time
which corresponds to 1:00 pm in Hawaii

Grab your friends and family and hang out virtually from anywhere around the globe during this 24-hour period!

22q and Zoom pic

In addition to the local live feeds, we will have links to engaging breakout activities where participants can visit zoos and amusement parks virtually, practice drawing skills, listen to music or story time, have fun uploading photos with pretend zoo animals and photos from previous zoo days, parade around their own living rooms, watch educational webinars, sing, dance, or just be together on the most special day of the year for those affected by chromosome 22q11.2 differences, because no matter where you live, from busy cities to rural communities, you will not be alone on 22q at the Zoo – Worldwide Awareness Day!

How does it work? It’s easy – just follow these steps:

  • Find your Local ZooM Event Time
    • For Toronto, it’s 12 noon on Sunday May 17th
  • You can JOIN ZooM anytime during the 24 hour period and meet and connect with people from across the globe
  • Don’t invite anyone over but post well wishes and photos on Facebooks official 22q at the Zoo Worldwide Awareness Page
  • Wear a vintage 22q at the Zoo – Worldwide Awareness T-shirt, since part of the fun is seeing how many folks can represent the 9 years of official T-shirts
  • Don’t have an official T-shirt? No problem, just wear red and let’s light up Zoom
  • Post the photos online here: https://dropevent.com/gallery/22qthezoo2020
  • We will create a virtual slide show to share following the event as a World-Wide 22q11.2 Pick-Me-Up!
  • Download your 22qandZooM profile photo and/or profile frame

If you would like to see some zoo animals virtually:

stuffed toy animals

stuffed red panda with zoo day t-shirts

Peer Support Group

Tuesday, 10th December 2019 1:00 pm

We invite you to join us for our upcoming Peer Support Group! This group is a chance for patients and caregivers alike to get together to discuss questions, successes and challenges.

When: Tuesday, December 10th, 2019 1:00 pm – 2:00 pm

Where: The Dalglish Family 22q Clinic, Toronto General Hospital, 8th Floor

We run two simultaneous groups:

  • A group for parents or caregivers – an opportunity to talk to other parents and caregivers about concerns, challenges, and successes. Our interdisciplinary staff members will be in attendance.
  • A group for our adult patients – a chance to meet each other, participate in some fun exercises and to discuss topical subjects supported by our staff.


Light refreshments will be provided. Please RSVP by Thursday, December 5th, 2019 by calling 416-340-5145 or emailing the clinic at 22q@uhn.ca.

We look forward to seeing you!!


The Dalglish Family 22q Clinic Staff

22q11.2 Parent Conference

Saturday, 2nd November 2019 1:00 pm

The 22q11.2 Parent Conference will take place on Saturday, November 2nd, 2019, from 1 pm to 5 pm.

Conference flyer

This conference will feature two speakers:

Ania Fiksinski (Graduate student at our Clinic)
Understanding IQ in 22q

Ann Douglas
Parenting Through the Storm

To find out more information and to register, please visit www.22qfamilies.org.