Resources for educators
Books and pamphlets
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Our Clinic’s Information for Educators and School Resource Teams (Updated October, 2017)
To print a booklet, please use this version. If you are using a duplex printer, please select “Print on both sides of the paper” and “Flip on short edge”. -
“Educating Children With Velo-cardio-facial Syndrome (Also Known As 22q11.2 Deletion Syndrome and Digeorge Syndrome)” by Donna Cutler-Landsman. The author also hosts seminars and webinars on the topic. Please visit http://www.cutlerlandsman.com
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“Faces of Sunshine: The 22q11.2 Deletion, a Handbook for Parents & Professionals” by Children’s Hospital of Philadelphia
- “Understanding Speech Problems in 22q11.2 Deletion Syndrome For Outcome Prediction” by Nicole Spruijt
Websites
Please see our resources section.
Publications
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Speech-Language Disorders in 22q11.2 Deletion Syndrome: Best Practices for Diagnosis and ManagementSolot CB, Sell D, Mayne A, Baylis AL, Persson C, Jackson O, McDonald-McGinn DM. Am J Speech Lang Pathol. 2019 Aug 9;28(3):984-999. doi: 10.1044/2019_AJSLP-16-0147. Epub 2019 Jul 22.
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Practical Guidelines for Managing Patients with 22q11.2 Deletion Syndrome.
Bassett AS, McDonald-McGinn DM, Devriendt K, Digilio MC, Goldenberg P, Habel A, Marino B, Oskarsdottir S, Philip N, Sullivan K, Swillen A, Vorstman J; International 22q11.2 Deletion Syndrome Consortium. (2011) J Pediatr. 159(2):332-9.e1. doi: 10.1016/j.jpeds.2011.02.039- This article is also available in additional languages.
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Functional outcomes of adults with 22q11.2 deletion syndrome.
Butcher NJ, Chow EW, Costain G, Karas D, Ho A, Bassett AS. (2012). Genet Med. 14(10):836-43. doi:10.1038/gim/2012.66 - Neurocognitive profile in 22q11 deletion syndrome and schizophrenia.
Chow EW, Watson M, Young DA, Bassett AS. (2006) Schizophrenia research, 87(1), 270-278. doi: 10.1016/j.schres.2006.04.007