22q Through My Eyes by Jordan Nanos
Jordan was an 18-year-old patient at the Hospital for Sick Children in Toronto when he started writing the book. It took him two and a half years to do it, and the book was edited by Andrea Shugar and Stephanie Ngo. Jordan and Stephanie recently received the 22q CARE Award from the Division of Clinical and Metabolic Genetics at SickKids.
The target audience of 22q Through My Eyes are teenagers and young adults with 22q11.2DS. You can purchase it for $20 directly from the Genetic Counsellors of Ontario, which is the publisher of the book. All proceeds from sales of this book will be donated to the SickKids Foundation 22q Family Fund. Thank you for your support!
Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome) by Raymond Tanner.
This book is a compilation of stories from families from Australia, Israel, France, New Zealand, South Africa, United Kingdom and the USA who tell about their trials and tribulations in bringing up a child with VCFS. It also describes Raymond’s life story (aged 54—diagnosed at 43) and his two sons—James, deceased aged 9 days old, died 18 years ago; Andrew, aged 16. Proceeds from the book will go to the VCFS Educational Foundation and to the VCFS Foundation Queensland Inc. new VCFS Clinic project.
Educating Children With Velo-cardio-facial Syndrome (Also Known As 22q11.2 Deletion Syndrome and DiGeorge Syndrome) by Donna Cutler-Landsman.
A Different Life: Growing Up Learning Disabled and Other Adventures by Quinn Bradlee. Bradlee is the son of long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. He was diagnosed with velo-cardio-facial syndrome at age 14. In this funny and fast-moving book, he talks about his "different life" of dealing with learning difficulties and social challenges.