The Dalglish Family 22q Clinic

• 22q Through My Eyes by Jordan Nanos
  • Jordan was an 18-year-old patient at the Hospital for Sick Children in Toronto when he started writing the book. It took him two and a half years to do it, and the book was edited by Andrea Shugar and Stephanie Ngo. Jordan and Stephanie received the 2018 22q CARE Award from the Division of Clinical and Metabolic Genetics at SickKids. The target audience of 22q Through My Eyes are teenagers and young adults with 22q11.2DS.
• Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome) by Raymond Tanner.
  • This book is a compilation of stories from families from Australia, Israel, France, New Zealand, South Africa, United Kingdom and the USA who tell about their trials and tribulations in bringing up a child with VCFS. It also describes Raymond’s life story (aged 54—diagnosed at 43) and his two sons—James, deceased aged 9 days old, died 18 years ago; Andrew, aged 16. Proceeds from the book will go to the VCFS Educational Foundation and to the VCFS Foundation Queensland Inc. new VCFS Clinic project.
• Educating Children With Velo-cardio-facial Syndrome (Also Known As 22q11.2 Deletion Syndrome and DiGeorge Syndrome) by Donna Cutler-Landsman.
  • The author also hosts seminars and webinars on the topic. Please visit www.cutlerlandsman.com for further information.
• A Different Life: Growing Up Learning Disabled and Other Adventures by Quinn Bradlee.
  • Bradlee is the son of long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. He was diagnosed with velo-cardio-facial syndrome at age 14. In this funny and fast-moving book, he talks about his “different life” of dealing with learning difficulties and social challenges.

22q11 Europe has generated a series of 15 videos on 22q-related cognitive development and mental health issues. The videos are available as a free Massive Open Online Course (MOOC) on Youtube:

22q11.2DS MOOC, cognitive development and mental health

The topics include:

• General Introduction
• 00 - Introduction
• 01 - Cognitive development
• 02 - Impact of cognitive difficulties in daily life
• 03 - Brain development
• 04 - Attention difficulties and ADHD
• 05 - Treatment of ADHD
• 06 - Social difficulties
• 07 - Accommodations for learning and social difficulties
• 08 - Mental health
• 09 - Anxiety and depression
• 10 - Stress and trauma
• 11 - Psychosis
• 12 - Treatment of psychosis
• 13 - Transition to adult care