Referral Information

For patients living in Canada

  • To refer teenagers (aged 17 years and over) and adults with confirmed or suspected diagnosis of 22q11.2DS to The Dalglish Family 22q Clinic, please complete the referral form and fax it, along with all relevant documents, to (416) 340‒5004. Our clinic will call you with information about the individual’s first appointment.

  • Individuals (aged 17 years and over) with suspected but unconfirmed diagnosis of 22q11.2DS can also be referred to our clinic for testing using the same referral form.

  • To refer infants or children with 22q11.2DS, please contact the 22q Deletion Syndrome Clinic at the Hospital for Sick Children in Toronto.

  • If you have questions or concerns, please email us at or call (416) 340‒5145.

For patients living outside of Canada

  • We recommend that you check the lists of 22q clinics on the websites of the International 22q11.2 Foundation and the 22q Society.

  • Unfortunately, we are unable to accept patients from the USA. If your patient lives in the States and is searching for 22q medical specialists, please check with the hospitals in your area. A 22q clinic (even if it is in a pediatric hospital) can provide you with information regarding specialists for adults.

  • If you would like to refer an international patient (but not from USA) to our clinic, please check the website of the International Patient Program at the UHN regarding eligibility.

Information leaflet

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