Survey for families affected by chromosome differences

G2MH, an international group of scientists and healthcare providers, many of whom are members of the 22q11.2 Society and supported by the US National Institutes of Health (NIH), is interested in learning about why families and persons affected by chromosome differences may or may not participate in research studies. In addition, given the current COVID-19 pandemic, G2MH is also hoping to learn about how families are coping during this difficult time. G2MH has therefore invited us to share the following short anonymous survey with our patients and families:

https://redcap.chop.edu/surveys/?s=NK7DMDX3CM

Many thanks in advance.