From the website of the International 22q Foundation:
Shai Ben-Yaacov, a 22q dad and producer of the nightly public radio show NewsWorks Tonight in Philadelphia, will be on the air tonight talking about learning of his son's heart condition and subsequent 22q diagnosis. His son has Tetralogy of Fallot, the same condition Jimmy Kimmel just made famous in a widely shared clip about his newborn son.
You can hear Shai live between 6:00 and 6:30 PM ET Thursday (5/4). If you're in the Philadelphia area, you can listen at 90.9 FM, or if not, you can stream the show at newsworks.org or whyy.org. If you don't catch it live, you can find the segment afterward at newsworks.org.